Welcome to CVSA UK
We are a registered charity providing information and support to sufferers of
Cyclical Vomiting Syndrome and their families.
Please remember to update us if your email address changes.
Family Day Annual Meeting 15th Nov 2014
Thanks to everyone that attended and offered help and ideas.
Thanks especially to our speaker Dr Simon Moodie, and to Dr Sonny Chong and Dr Venkatesh Krishnappa for taking part in the one to one sessions and panel discussions. The Feedback so far has been excellent.
Next Family Day: Sat 21st Nov 2105
Thanks to Eureka! for donating samples of sick bags
These were recommended by members of the US society and we had samples to give away at the meeting.
We welcome Norway to the international CVS Family
Nina Hellebakken Hagen is developing a Norwegian Language CVS website
She is still working on it but it is always great to have a new country and someone else working to promote CVS knowledge.
Text Donations to CVSA UK
Just text CVSA10 £XX where X is an amount £2, £5 or £10 to 70070
New Survey- Can you Help?
Emily Smith is running two surveys on CVS, please take a minute to fill them in, details are on the survey page linked on the left.
We need a new supplier to print our newsletters. Can you ask your employer or school/college if they can help? We usually print 200 copies, twice a year, 3200 sheets each time, that is 6.4 standard packs of paper. At consumer prices the paper cost is less than £20 each time.
Seen a health claim that's too good to be true? Then Ask for Evidence
International CVS Awareness Day - March 5th
Several of the international CVS societies & charities have agreed that we will work together to promote awareness and fundraising and will promote an international awareness day to focus those efforts. Please think what you can do to help. A fundraising activity on or near the day would be fantastic but something as simple as putting up posters (see resources section), or writing or emailing your local paper, could make a big difference and it won't take much time or effort.
Megan Harvey tells her story in Real People Magazine
All medical information on this site has been reviewed by our Medical advisors, shown below, people's individual stories on our Experiences pages are their own views and do not constitute medical advice.
Dr Sonny Chong Consultant Paediatrician Queen Mary’s Hospital, Carshalton, Surrey
Keith J Lindley BSc (Hons) PhD MB MRCP(UK) MRCPCH UCL Institute of Child Health, Great Ormond Street Hospital
Dr Ishaq Abu-Arafeh, Consultant in Paediatrics and Paediatric Neurology Forth Valley Royal Hospital and the Royal Hospital for Sick Children, Glasgow
Dr Alberto Ravelli Pediatric gastroenterologist and hepatologist Brescia University, Italy
The information on this site is provided to help you understand CVS and support sufferers but is not intended to replace any advice from your own health care professional.
We do not sell or pass on any personal information you may provide us if you contact us to any 3rd party. We maintain a database of membership, members can request paper records are kept and opt out of the database entry.
We are an all volunteer organisation, a registered charity with all funding being provided via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Our editorial content is not influenced by the funding sources. Our website hosts sponsored ads and links from which the charity earns a small income, 100% of this income is spent on supporting the charities aims. We don't accept advertising from any adult-orientated material or from advertisers promoting any "treatments" for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the word ‘Advertisement’