CVS logo



What is CVS?





Adult CVS







Family Day



Welcome to CVSA UK

We are a registered charity providing information and support to sufferers of

Cyclical Vomiting Syndrome and their families.

This website is certified by Health On the Net Foundation. Click to verify.


Please remember to update us if your email address changes.


We have a new Awareness Day page please take a look and see what you can do to help, please tell us about any events you have planned. We have some resources you can use to help raise awareness. Write to your local paper, we have a template to help you, anythng you can do may help one person with CVS find help faster.


Diary Date: Family Day November 21st 2015


Tues 24th "3 person" embryos bill passed by the Lords


Buy Trolley Coins/Keyrings Ribbons and Wristbands to support CVSA

T-shirts can be ordered now!

see our Awareness Day page

trolley cvs ribbon


New: CVSA eBook available on the Apple iBook store for Mac, iPad and iPhone- free

ebook image


CVS Voices

Take a look at our new video


Congratulations to Amanda Seery and family, from CVS Ireland

Welcome Willow Laura Paige Seery Born 7th Feb 2015

Willow Seeey


UK to allow "3 person embryos"

Mitochondrial donation is probably a less dramatic description, but the initial use is likely to be limited to life threatening or life-limiting mitochondrial conditions. In the longer term it might be an option to prevent conditions such as CVS. Many, but perhaps not all, CVS sufferers are thought to have changes in mitochondrial DNA which may contribute to the condition. It might be possible to use a donor egg from a non-CVS sufferer to provide the mitochondria for in vitro fertilisation by the natural parents and as a result hope not to pass on CVS. This is all very speculative but it is an interesting development.


Stop the Saatchi Bill

Seen a health claim that's too good to be true? Then Ask for Evidence

Ask for evidence logo

Text Donations to CVSA UK

Just text CVSA10 £XX where X is an amount £2, £5 or £10 to 70070

All medical information on this site has been reviewed by our Medical advisors, 
shown below, people's individual stories on our Experiences pages are their own views and 
do not constitute medical advice.
Dr Sonny Chong Consultant Paediatrician 
Queen Mary’s Hospital, Carshalton, Surrey
Keith J Lindley BSc (Hons) PhD MB MRCP(UK) MRCPCH  
UCL Institute of Child Health, Great Ormond Street Hospital
Dr Ishaq Abu-Arafeh, 
Consultant in Paediatrics and Paediatric Neurology Forth Valley Royal Hospital and the 
Royal Hospital for Sick Children, Glasgow
Dr Alberto Ravelli
Pediatric gastroenterologist and hepatologist Brescia University, Italy

Dr Simon Moodie
Consultant Gastroeneterologist
Epsom & St Helier NHS Trust Surrey

Dr Venkatesh Krishnappa
Consultant Paediatric Gastroenterologist
Alder Hey Children's Hospital Liverpool

Dr Maureen Lawson
Consultant Paediatric Gastroenterologist
Great Northern Children's Hospital Newcastle

About CVSA

The information on this site is provided to help you understand CVS and support sufferers
but is not intended to replace any advice from your own health care professional.
We do not sell or pass on any personal information you may provide us if you contact us to
any 3rd party. We maintain a database of membership, members can request paper records are 
kept and opt out of the database entry.
About CVSA
We are an all volunteer organisation, a registered charity with all funding being provided 
via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Our editorial content is not influenced by the funding sources. Our website hosts
sponsored ads and links from which the charity earns a small income, 100% of this income
is spent on supporting the charities aims. We don't accept advertising from any 
adult-orientated material or from advertisers promoting any "treatments" for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the
word ‘Advertisement’

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information:
verify here.

Search only trustworthy HONcode health websites: