Welcome to CVSA UK
We are a registered charity providing information and support to sufferers of
Cyclical Vomiting Syndrome and their families.
Please remember to update us if your email address changes.
AWARENESS DAY March 5th
We have a new Awareness Day page please take a look and see what you can do to help, please tell us about any events you have planned. We have some resources you can use to help raise awareness. Write to your local paper, we have a template to help you, anythng you can do may help one person with CVS find help faster.
Diary Date: Family Day November 21st 2015
Tues 24th "3 person" embryos bill passed by the Lords
Buy Trolley Coins/Keyrings Ribbons and Wristbands to support CVSA
T-shirts can be ordered now!
see our Awareness Day page
New: CVSA eBook available on the Apple iBook store for Mac, iPad and iPhone- free
Congratulations to Amanda Seery and family, from CVS Ireland
Welcome Willow Laura Paige Seery Born 7th Feb 2015
UK to allow "3 person embryos"
Mitochondrial donation is probably a less dramatic description, but the initial use is likely to be limited to life threatening or life-limiting mitochondrial conditions. In the longer term it might be an option to prevent conditions such as CVS. Many, but perhaps not all, CVS sufferers are thought to have changes in mitochondrial DNA which may contribute to the condition. It might be possible to use a donor egg from a non-CVS sufferer to provide the mitochondria for in vitro fertilisation by the natural parents and as a result hope not to pass on CVS. This is all very speculative but it is an interesting development.
Seen a health claim that's too good to be true? Then Ask for Evidence
Text Donations to CVSA UK
Just text CVSA10 £XX where X is an amount £2, £5 or £10 to 70070
All medical information on this site has been reviewed by our Medical advisors, shown below, people's individual stories on our Experiences pages are their own views and do not constitute medical advice.
Dr Sonny Chong Consultant Paediatrician Queen Mary’s Hospital, Carshalton, Surrey
Keith J Lindley BSc (Hons) PhD MB MRCP(UK) MRCPCH UCL Institute of Child Health, Great Ormond Street Hospital
Dr Ishaq Abu-Arafeh, Consultant in Paediatrics and Paediatric Neurology Forth Valley Royal Hospital and the Royal Hospital for Sick Children, Glasgow
Dr Alberto Ravelli Pediatric gastroenterologist and hepatologist Brescia University, Italy Dr Simon Moodie Consultant Gastroeneterologist Epsom & St Helier NHS Trust Surrey Dr Venkatesh Krishnappa Consultant Paediatric Gastroenterologist Alder Hey Children's Hospital Liverpool Dr Maureen Lawson Consultant Paediatric Gastroenterologist Great Northern Children's Hospital Newcastle
The information on this site is provided to help you understand CVS and support sufferers but is not intended to replace any advice from your own health care professional.
We do not sell or pass on any personal information you may provide us if you contact us to any 3rd party. We maintain a database of membership, members can request paper records are kept and opt out of the database entry.
We are an all volunteer organisation, a registered charity with all funding being provided via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Our editorial content is not influenced by the funding sources. Our website hosts sponsored ads and links from which the charity earns a small income, 100% of this income is spent on supporting the charities aims. We don't accept advertising from any adult-orientated material or from advertisers promoting any "treatments" for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the word ‘Advertisement’