Welcome to CVSA UK
We are a registered charity providing information and support to sufferers of
Cyclical Vomiting Syndrome and their families.
Please remember to update us if your email address changes.
Family Day November Sat 21st 2015
Another meeting is over!
Thanks to everyone who attended for helping make the day a success. Special thanks to our medical advisors Dr Venkatesan, Dr Chong and Dr Lawson for giving up their time to help people with CVS.
Thank to Ellie, Simon and James for their support by running the creche again.
Diary Date: Next year's meeting Nov.12th 2016
In the press: Thanks to Siobhan Hall for telling her story. The headline is a little misleading but it gets the name and details of the conditions in the public eye. Amazingly this also got into the New York Post!
We have added a Department of Education article on provision for children with health conditions. This is something many familes struggle with and it can even lead to legal battles. If you have any advice or stories please contact us and share your experience to help others. It is a complex problem.
The document can be downloaded from the Resources page.
Jenny Cawley raised over £650 from sponsorship for this year's Wirral Coastal Walk. Thanks to all who took part and contributed.
The sun shone this year- last year there were gales!
AWARENESS DAY March 5th
Thank you to everyone who contributed to this year's Awareness day.
We hope all the CVS societies and supporters around the world had a great day and that we have started something that can only grow and grow and help more and more people.
Have you got your T shirt yet?
Fruit of the Loom brand, heavy cotton. Order from the Awareness page
Organising an event? We now have a MyDonate page where you can collect funds online, link below - its simple to set up and all money raised comes to the charity- no fees applied.
The UK now has the lowest public spending on scientific research of any G8 country
This is really bad news not just for medical research but every aspect of our economy. Britain has always had a strong science base and in many fields we have led the world. We are world leaders in many fields of research, producing over 10% of global scientific output with only 1% of the global population. It's a really shortsighted move to lose that leadership position. Please support the campaign by
Buy Trolley Coins/Keyrings Ribbons and Wristbands to support CVSA
T-shirts can be ordered now! In Stock
see our Awareness Day page
New: CVSA eBook available on the Apple iBook store for Mac, iPad and iPhone- free
This dangerous and ill considered bill has been defeated- for now. It would have legitimised pseudoscientific and purely "quack" treatments. This is good news for everyone but we need to be vigilant and promote evidence based treatments.
Seen a health claim that's too good to be true? Then Ask for Evidence
Text Donations to CVSA UK
Just text CVSA10 £XX where X is an amount £2, £5 or £10 to 70070
All medical information on this site has been reviewed by our Medical advisors, shown below, people's individual stories on our Experiences pages are their own views and do not constitute medical advice.
Dr Sonny Chong Consultant Paediatrician Queen Mary’s Hospital, Carshalton, Surrey
Keith J Lindley BSc (Hons) PhD MB MRCP(UK) MRCPCH UCL Institute of Child Health, Great Ormond Street Hospital
Dr Ishaq Abu-Arafeh, Consultant in Paediatrics and Paediatric Neurology Forth Valley Royal Hospital and the Royal Hospital for Sick Children, Glasgow
Dr Alberto Ravelli Pediatric gastroenterologist and hepatologist Brescia University, Italy Dr Simon Moodie Consultant Gastroeneterologist Epsom & St Helier NHS Trust Surrey Dr Krishnappa Venkatesh Consultant Paediatric Gastroenterologist Alder Hey Children's Hospital Liverpool Dr Maureen Lawson Consultant Paediatric Gastroenterologist Great Northern Children's Hospital Newcastle
The information on this site is provided to help you understand CVS and support sufferers but is not intended to replace any advice from your own health care professional.
We do not sell or pass on any personal information you may provide us if you contact us to any 3rd party. We maintain a database of membership, members can request paper records are kept and opt out of the database entry.
We are an all volunteer organisation, a registered charity with all funding being provided via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Our editorial content is not influenced by the funding sources. Our website hosts sponsored ads and links from which the charity earns a small income, 100% of this income is spent on supporting the charities aims. We don't accept advertising from any adult-orientated material or from advertisers promoting any "treatments" for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the word ‘Advertisement’